There may also be practical issues such as transportation. This can be especially problematic if you live far from major medical centers and rely on public transportation.
The standard treatment for early stages of anal cancer is a daily combination of radiation therapy and chemotherapy, but some people have difficulty incorporating it into their daily routine. “Radiotherapy is given every day for five-and-a-half to six weeks, so you have to find a ride every day, which can make staying on schedule even more difficult, especially when you start feeling the effects of the radiation, such as fatigue. Radiation. It’s hard to get out of bed,” says Dr. Morris. “However, missing a dose or delaying a dose can affect the outcome.”
Getting proper care for anal cancer as a Black person
There is no evidence that black men have worse outcomes at any stage of anal cancer, but only if they receive the best treatment. To do that, they need to be their own best advocates. “Due to the stigma and rarity of anal cancer, people diagnosed with anal cancer often have few resources to cope with the physical, emotional, and financial challenges,” says Dr. Justin Armadaco-founder of Anal Cancer Foundation (ACF).
These challenges intersect with other barriers to health, such as racial barriers. “For the anal cancer community, health equity means everyone has equal access and ability to receive best-in-class prevention, detection, treatment, follow-up care, and social-emotional support. “I do,” Almada said.
If you are a black man with anal cancer and want the best possible care and support, consider the following advice.
Find the right team. Because anal cancer is relatively rare, it is best to seek treatment from someone with specialized expertise. If possible, Dr. Almada recommends receiving treatment at a major cancer hospital, which has more resources and services to deal with the socioemotional, financial, and physical impacts of the diagnosis. Masu. This includes social workers who can help with logistics, finances and emotional resilience.
“Furthermore, larger hospitals are more likely to have LGBTQIA+-focused providers,” he says. Morris agrees. That’s because local hospitals only see one or two cases of anal cancer a year. “We need people who see more cases and are up to speed on the latest research,” Morris says.
However, traveling long distances to major cancer centers can present financial and logistical obstacles. One solution is to be treated locally by a team in consultation with anal cancer specialists. “Even if a patient is being treated locally, major cancer centers can provide helpful information and help with treatment decisions,” Almada says.
Ask about side effects and resources to deal with them. Chemoradiotherapy can cause hair loss, nausea, and radiation burns. If the cancer is not successfully cured, surgery is usually next and sometimes a colostomy may be needed. “Get pain management early in the process,” Almada says. “Palliative care teams can help you overcome the physical and emotional challenges of your diagnosis. We encourage all patients to discuss referrals with their care team.”
Talk to your care team about sex. “There can be major problems that affect sexual function,” Morris says. Radiation can cause anal stenosis, which is hardening and thickening of tissue, which can make receptive anal intercourse painful. But “there are dilators that can offset some of the narrowing,” he says.
Erectile dysfunction may occur as a side effect. Rectal incontinence may also occur, but it usually improves over time. Physical therapists trained in pelvic floor therapy can resolve many sexual side effects. “Having a professional you feel comfortable talking to about sexual health is essential,” says Dr. Multani.
Let’s connect. Armada started ACF more than 10 years ago to help people find resources in their area and the support they need on their journey. This medical service helps patients resolve all their medical and financial issues, access clinical trials, and identify nearby centers of excellence. The foundation serves more than 1,000 anal cancer patients annually. Farrah Fawcett Foundationwas founded after the actress passed away from anal cancer and supports research and patient education specifically related to anal cancer and HPV. lastly, National LGBT Cancer Network is an invaluable resource for LGBTQ+ cancer survivors.
Find peer support. No one knows what it feels like to go through cancer like someone who has lived through it. Ask your health care team if they can connect you with a cancer survivor support group that might work for you.One of her great resources is ACF Peer-to-peer support programmatches patients and caregivers with others with similar experiences.
Please contact your family and friends. You may not feel comfortable discussing or even disclosing your HIV status or anal cancer diagnosis with your loved ones. But find someone to talk to openly. Cancer can be lonely, but you’re much better off when you’re not, so it’s important to remember that your friends and family will be there to help you when you need it.
Be your own advocate. “If something doesn’t feel right, ask for another evaluation or get a second opinion and keep pushing,” Morris says. “You know your body better than anyone.”