Favorite organizations for important UC information

Digestive Disease Week (DDW)

Every year, Everyday Health editors attend DDW, the world’s largest gathering of physicians, researchers, and industry in the fields of gastroenterology, hepatology, endoscopy, and gastrointestinal surgery.

Crohn’s and Colitis Foundation (CCF)

CCF is a leading nonprofit organization dedicated to finding treatments for UC and Crohn’s disease. This organization is at the forefront of his IBD research and is committed to educating, empowering, and supporting those suffering from these diseases. Visit the CCF website to find your local chapter.

American Association of Colorectal Surgeons

The society is comprised of more than 3,000 colon and rectal surgeons and is dedicated to advancing and promoting the science and practice of treating patients with diseases and disorders affecting the colon, rectum, and anus. Although aimed at professionals in the field, the website has an educational library with videos and resources to help you find a surgeon.

Benaroya Institute, Virginia Mason

This Virginia Mason institute in Seattle is one of the few facilities dedicated to discovering the causes and treatments for autoimmune diseases such as UC. Benaroya has already contributed to research advances in more than 80 of his immune system diseases. Autoimmune Life Her blog provides information about local events and personal stories of patients living with autoimmune diseases.

Favorite Ulcerative Colitis Blogger

SoBadAss.Me

Sam Cleasby created his blog in 2013 to raise awareness about IBD and the struggle with self-esteem. Cleasby also has a radio show on BBC Radio Sheffield where he talks about modern family life, including relationships, disabilities, nutrition and children.You can subscribe to her blog via her email or follow her at Facebook or twitter.

Favorite resource for diet advice

Dietary guide for Crohn’s disease and colitis

This book by A. Hilary Steinhardt, MD, provides dietary strategies and recipes to help manage inflammatory bowel disease. Dr. Steinhardt, director of the integrative department of gastroenterology at Mount Sinai Hospital and the Mount Sinai Hospital University Medical Network in Toronto, collaborates with clinical dietitian Julie Sepo to help people stay healthy during flare-ups. We provided people with well-researched dietary advice to help them. Also the period of remission. This book is packed with 150 recipes, from risotto to stews, to help people with IBD eat well and avoid malnutrition.

for all grains

Doctors assured Daniel Walker that diet was not a factor in his ulcerative colitis flare-up. But after years of suffering and multiple hospitalizations, Walker realized he needed to change his diet. Now two years into her remission, the mother, wife, and self-taught chef has begun blogging about her experiences and helping others suffering from her inflammatory bowel disease. We have shared recipes to help us. Her Ms Walker cookbook can be purchased on her website. It’s packed with nutrition resources, including her blog and videos.

favorite apps

Oshi health

This all-in-one app helps you track symptoms and general information about sleep, stress, diet, and fitness and share it with your doctor. Read doctor-approved articles and ask questions from health professionals.

For more of our favorite ulcerative colitis apps, check out 5 Phone Apps for UC Patients.

favorite hideout

camping oasis

More than a decade ago, CCF established a residential summer camp to enrich the lives of children living with IBD. The camps are located in most major regions of the country as a way for young people living with IBD to know they are not alone, try new sports and activities, and build friendships with people who truly understand. provided.

Target ages vary depending on the campsite. To find a campground near you, visit: Crohn’s and Colitis Foundation website.

Girls with guts

What started as a weekend gathering of five IBD bloggers has grown into a global support network for women living with inflammatory bowel disease. Group members share stories and experiences to help each other feel confident despite IBD and stomas. The organization provides supplies to people in need of stoma surgery, as well as a pen pal program and annual retreat to help women connect. Sign up for our newsletter to receive news and updates quarterly.

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